After months of editing and revising, my committee has determined that I can move onto the next step with my thesis (ie: it can be defended soon). To say that I was excited (and somewhat in a daze) is an understatement. I wanted to tell my father; while I know that his reality has been … Continue reading Sharing reality
(this was begun on September 20. Most of it was written then). One of the things people often say when you are in the role of taking care of someone is that you need to make sure that you take time to care for yourself. That you need to ensure that you also focus … Continue reading Dementia Caretaker’s ‘Self’-Care.
One of things that I absolutely despise when I mention that my father has dementia is the inevitable "but he was so intelligent" or "I can't believe it--he is such a thinker" or "really?! Are you sure? He is such an intelligent man, he must be just scatterbrained" (yes. I'm sure. It's not him being … Continue reading “But He’s So (fill in the blank)!”
For the past several months, we have noticed a tendency in my father where he doesn't quite answer a question, but rather talks around and around and around and around and around and so forth. He used to do this when he was in posssession of his full mental faculties (because you know, Jesuit-trained abstract … Continue reading Confabulating About Confabulation.
On occasion, when I am so lucky, I teach a university course here and there. One of my primary objective with any course I teach (or guest lecture) is understanding the terminologies. I often feel that it is a good foundation to ensure we are all speaking about—and understanding—the same thing. I mean, one’s definition … Continue reading A Crash Course in Dementia
My family and I are very open about Apa's PART (a type of dementia). It's a disease, and it's nothing to be ashamed of. Apa couldn't help it that his brain decided to rewire itself, which affects his memory, behaviour and all things associated with his cognitive abilities. But, what's a tad annoying is the … Continue reading What NOT To Say
For the last several months, one of my father's favourite retort when confronted with something he does not remember is "since when?" He uses it. All. The. Time. "No, Apa, you cannot have that extra piece of cake." "Why?" "You have diabetes." "Since when?" (17 years). "Apa, maybe try to the decaf as opposed to … Continue reading “Since when?”