After months of editing and revising, my committee has determined that I can move onto the next step with my thesis (ie: it can be defended soon). To say that I was excited (and somewhat in a daze) is an understatement. I wanted to tell my father; while I know that his reality has been … Continue reading Sharing reality
Tag: dad
“But He’s So (fill in the blank)!”
One of things that I absolutely despise when I mention that my father has dementia is the inevitable "but he was so intelligent" or "I can't believe it--he is such a thinker" or "really?! Are you sure? He is such an intelligent man, he must be just scatterbrained" (yes. I'm sure. It's not him being … Continue reading “But He’s So (fill in the blank)!”
What NOT To Say
My family and I are very open about Apa's PART (a type of dementia). It's a disease, and it's nothing to be ashamed of. Apa couldn't help it that his brain decided to rewire itself, which affects his memory, behaviour and all things associated with his cognitive abilities. But, what's a tad annoying is the … Continue reading What NOT To Say
“Since when?”
For the last several months, one of my father's favourite retort when confronted with something he does not remember is "since when?" He uses it. All. The. Time. "No, Apa, you cannot have that extra piece of cake." "Why?" "You have diabetes." "Since when?" (17 years). "Apa, maybe try to the decaf as opposed to … Continue reading “Since when?”
Making ice
While it can be difficult to navigate his ever changing reality, the day-to-day details of care-taking some with cognitive decline can be mundane. Routine is important, oh so important. I'm convinced that routine is one of those tenuous bridges that crosses the abyss, connect our reality with theirs. Without that particular bridge, it's hard to … Continue reading Making ice
Apa’s struggle
One of the more despairing moment when taking care of someone who has dementia or any other form of cognitive decline (and is declining rapidly) is that the person they used to be is gone, but their bodies is still there. Occasionally, a glimmer of the person shines through; it might be with their smile, … Continue reading Apa’s struggle
Meandering His Reality 